Went for IV fluid infusion today and went to get weighed and vitals taken. I have some nasty sores on my feet, so it hurts to walk (sores are side effects of chemo) so the Nurse had me sit in a chair-type scale. I was 99 lbs last week and this scale said 105 lbs.
"no way, I said to the nurse. Weigh me on the regular scale. 105 lbs. I grabbed the nurse and hugged her. "My family will be so happy I gained weight"
I think the social outings this weekend helped me to eat more than usual, and I was a bit more conscious of forcing myself to eat. So, even though food tastes - tasteless" and my mouth still hurts, I DID it. I just have to keep going!
XOXOXO Peggy
Tuesday, July 28, 2009
Sunday, July 26, 2009
Saturday's Doings
Kate took me to get hydrated at the hospital Saturday morning, then we did some errands. I rested up a bit then went up to Evanston, for the Driscoll girls get-together at Karen LaPato Felix's home in Evanston. What a great evening we had- sooooo easy to be with such a wonderful band of women and their equally delightful husbands!
Friday, July 24, 2009
My Converstaion with God today
I don't want this post to bum anybody out, but it's on my mind so I thought I'd share.
I had a good run of errands today with mom, then took a walk, now that I'm feeling better. Getting dehydrated is more debilitating than I think.
Anyway, on my walk, I had some prayerful talk with God.
"Dear God, I WILL not die from this cancer. No freakin way. I need 20 years, 20 years to see my baby girls on their paths, paths I hope me, Lee and of course YOU, will guide them .
I will not be one of those 5-year survival stats. I DO not want to be a sad story at the end of it all. I need to live, to thrive and figure out YOUR purpose for me though all this. Please give me the time to do it, I will do you proud, just show me the way.
YOU NEED ME to be your soldier, to minister in whatever way you want me to. I ask for this, and it may be selfish, but I promise not to disappoint."
AMEN
I had a good run of errands today with mom, then took a walk, now that I'm feeling better. Getting dehydrated is more debilitating than I think.
Anyway, on my walk, I had some prayerful talk with God.
"Dear God, I WILL not die from this cancer. No freakin way. I need 20 years, 20 years to see my baby girls on their paths, paths I hope me, Lee and of course YOU, will guide them .
I will not be one of those 5-year survival stats. I DO not want to be a sad story at the end of it all. I need to live, to thrive and figure out YOUR purpose for me though all this. Please give me the time to do it, I will do you proud, just show me the way.
YOU NEED ME to be your soldier, to minister in whatever way you want me to. I ask for this, and it may be selfish, but I promise not to disappoint."
AMEN
Just a little update on my past week. I was weak and tired last week, so when I went in for my Erbatux infusion, they looked at me and said "Let's just get you hydrated and skip chemo today" What's happenings I'm losing so much liquid through my ileostomy pouch- it leaves me as soon as I drink. So when I was getting an IV, I had a nutritionist comes down. She told me to make a Hydration solution of 1 lite water, 3 tbs of sugar and 1 tsp of salt. Add Crystal lite
if needed. I think it's starting to help. It tastes better than plain water and makes me thirsty so I think I'm drinking more. I also need to pump immodium.
So I went for full chemo on Thursday, with IV hydration on Saturday, plus taking my pump off(the 48-hour folfuri chemo infusion)
Over the weekend, we went to Art & Mindy's house in Mokena for our annual swimming party. It was cold and damp. but the kids managed to make use of the pool. It was soooo great seeing everyone and I did my usual "shopping" in Mindy's Sample closet - she reps several clothing lines. I scored 3 great sweaters for the fall- super cute!
I've got a heavy schedule of Hospital visits this coming week- Chemo, Cat Scan and IV infusions.
Oh and good news, my CRE (tumor marker) blood count went down again from last weeks 11.9 to this weeks. 9.9. That simply means I'm still responding positively to chemo. It doesn't mean that when it gets to ZERO, the tumors are gone. BUT, hopefully after this next Pet Scan, the oncology team will start discussing other target options - do I stay on current chemo regimen? They say they will change the regimen when it stops being affective. So who knows how long.
Have a great weekend
XOXOXOX Peggy
if needed. I think it's starting to help. It tastes better than plain water and makes me thirsty so I think I'm drinking more. I also need to pump immodium.
So I went for full chemo on Thursday, with IV hydration on Saturday, plus taking my pump off(the 48-hour folfuri chemo infusion)
Over the weekend, we went to Art & Mindy's house in Mokena for our annual swimming party. It was cold and damp. but the kids managed to make use of the pool. It was soooo great seeing everyone and I did my usual "shopping" in Mindy's Sample closet - she reps several clothing lines. I scored 3 great sweaters for the fall- super cute!
I've got a heavy schedule of Hospital visits this coming week- Chemo, Cat Scan and IV infusions.
Oh and good news, my CRE (tumor marker) blood count went down again from last weeks 11.9 to this weeks. 9.9. That simply means I'm still responding positively to chemo. It doesn't mean that when it gets to ZERO, the tumors are gone. BUT, hopefully after this next Pet Scan, the oncology team will start discussing other target options - do I stay on current chemo regimen? They say they will change the regimen when it stops being affective. So who knows how long.
Have a great weekend
XOXOXOX Peggy
Friday, July 17, 2009
My Support Group Girls- The Best There Is
After just a few sessions with the Women with Cancer Support Group at Wellness House, I am hooked on the strength, passion, drive, determiniation and fight that these lovely women have and share with each other.
This is women at their finest: sharing, supporting, and caring on a level that can't be matched!
I can see how this support group energizes me the day after chemo and puts a spring in my step just for having shared an hour & 1/2 of loving support in our collective fight in the nasty, evil Cancer War.
A Bounty of Blessings - Can you say Martha Stewart?
Another Angel was sent to me and my family in the form of Janice Marion. She flew in from California, took over my mom's kitchen and in 2 days whipped up the following:
- Roasted Tomatoe Bisque Soup
- Chicken Veggie Soup
- Asparagus Soup
- Potato Cheese Soup
- Brown Rice
- Glazed Carrots
- Broccoli
- Crudites
- Home Made Ranch Dressing/Dip
- Chicken and Gravy
- Noodles
- Alfredo Sauce
- Chocolate Chip Cookies
- Deviled Eggs
She cooked and organized all this food into containers for freezing. Thank goodness we bought a deep freezer a few months ago!
What an INCREDIBLE act of love and generosity. Overwhelming to take in and be the recipient of such kindness and generosity.
Janice is the beautiful Blonde among the sea of brunettes!
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