Thursday, April 8, 2010

Riddle Me This: NO Standard of Care post Liver Resection?

So, my Onc calls me back - I left her a message about re-starting chemo as per Dr. Fong, who did my liver resection a few weeks ago. He suggested 3-6 months, same chemo as I was on.

Onc states (once again) that I have her stumped - that there is NO STANDARD OF CARE after a liver resection. Can that be true??? the oncology field has not a recommended treatment plan after a successful liver resection? 

One person at the American Cancer Society Message Board replied rather strongly:  "WHY would you continue to put toxic chemicals in your body as "insurance" if there is no indication that any cancer cells remain per current means of detection?"

She reached out to a few of her mentors, one says No treatment and another says to do a different coctail of drugs than what I was on.

I am agahst. I asked her - "so Doc, have you not ever had a patient like me? Stage 4, still alive, liver resection?" And she said "No".

At this point, no mets were detected anywhere but liver. Onc & I agree that I want to do chemo as some "insurance" against the microspcopic cells lurking aound. She will reach out for more opinions.


I find this distrubing and odd.

2 comments:

  1. Peggy, You are a pioneer in this case and as such you may need to 'Boldly go where no one has gone before.' Maybe this is part of God's plan for your return to health - that you should establish a successful post-op plan for others who are going to follow in your shoes? Don't worry about asking God for too much in your prayers - the fact that you (and we) are turning to Him is all that He asks in return... Keep the faith! Sarah and Sean

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  2. Ask, and it shall be given you; seek, and ye shall find; knock, and it shall be opened unto you; For every one that asks receives; and he that seeks finds; and to him that knocks it shall be opened. O what man is there of you whom, if his son asked for bread, will you give him a stone? Or if he asks for a fish, will he give him a serpent? If you then, being evil, know how to give good gifts to your children, how much more shall your Frather, who is in heaven, give good things to them that ask him?
    Matthew 7:7-11

    And so I say...ask away Peggy he is a loving and faithful Father.

    Hugs,
    Mary

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