Getting juiced again today. the tumor in my colon was tested for some mutation or another, i don't have the mutation, so there is some additional cocktail they need to give me today. 6 hour infusion...hoping i'm coherent..last week was a doozy!
Poor Lee, there is NO comfortable chair or anything for family/friends in the Loyola setup. The waiting room is bright any sunny, but stiff nasty chairs, and no place for people to plug in laptops etc while they do the waiting game for loved ones.
Praire Cafe Soup- the chicken noodle soup is still my nutitional lifeline. I'm like an addict if i know i'm running out..which I am, and which kate is taking care of for me today. I had my mom get 2 cartons of it the other day and she took one home because she thought I had too much and I wouldn't get thru it.!
Showers: It hit me yesterday that it'll be a looong time until i can take a "normal" shower. Lee wraps me in Saran Wrap(so anti-fantasy) to cover the Ostomy bag so it doesn't get too soaked.
Mushy-Love stuff and shout-outs: You all know me as pretty open emotionally, not embarassed to cry ans how emotion. Lately, I feel like the leaky faucet in my bathroom- lots of tears. But I have to say, most of the tears are rooted in the overwhelming and astounding gratitude I feel every day to all of you that keep on giving and praying and ministering to me and my family.
Seriously, at this very moment, I there seems to be no bottom , no end in sight to the constant love and giving and all I am receiving. It's almost embarassing that I have so much, it is without a doubt HUMBLING to the core of my soul.
I tell Lee, "Look at what we are being taught! How to love and give in a situation like this. Now we know." I can't WAIT to get stronger and better so I can take the lessons I am learning and shine my light on others and it is being shone on me!
Time to change the bag, put on my hot pair of stretch pants and shuffle to the Hospital!
Love Love Love!!!!! Peg