I've been in Loyola since Wednesday afternoon. If you're interested here's the clinical details:
Tuesday I started having output from my butt - that's supposed to be out of commission, as I'm on an ileostomy. The Dr.was thinking this was unusual and wanted me to go to ER. After 6 hours, and some xrays, they determined that it was just some old stuff" wanting to escape, and they saw no blockages or fistulas.
The frequency of wanting to "eliminate" slowed down and then Bam, on Wed it started all over again on my way to Chemo. Lots of pain and urgency, so Dr. Lo postponed chemo, consulted with Dr. Shoup, my surgeon, and had me admitted.
MRI shows that I have some leakage from my ileo into the colon- the contrast liquid they give you to light up your organs was found in my colon.
So now it's a mystery as to why:
do I have a fistula? When tissue from to adjoining organs kind of fuse together? They haven't seen it on the scans, but the Dr. stated that it doesn't mean there isn't one.
Is it just leftover junk in my colon?
My other issue is the amount of liquid output in my pouch. My potassium and electrolytes are too low because of how much I'm losing thru diarrhea.
So, my prayer for this week is: Dear God, please let my doctors find a definitive answer to my painful output problems. Even more urgent, is for a way to slow down my output and keep me from having to go on a high dose drug with lots of side effects (tincture of opium) OR the worst would be doing IV nutrition. I pray that the lower spectrum drugs can slow down my output and loss of electrolytes.
Love to all my angels
UPDATE: Damn, I have to stay another day! The gastrograph film test they want to take can't be done today, MAYBE Satruday if not Monday. Do I have stay in the hospital all weekend? I think the prep they do has to be done at hospital. This totally sux.