My current challenge: I have a really high output into my ileostomy bag. I drink 8 ozs and 6 oz comes out almost immediately. Since I was in the hospital, they were tracking this very closely. I was outputting 1000 ccs by noon, when acceptable range is 1500 per day.
thus, the dehydration and weight challenges. They tried a mix of Lomodil and Opium tincture 2 days in the hospital to slow it down. Didn't work. They upped the Opium dosage when I got home and KNOCK ON WOOD - it "seems" to be slowing it down.
What I pray for, is that the drugs work, because next step would be an IV feeding tube. I can't go there folks. Failure not an option. The Gastro Intestinal Cancer team is meeting today and will discuss my case to come up with plan. They need me stable and strong to keep on with chemo then Radiation.
Radiation- the word just scares me. The Breast Cancer ladies say it's a cake-walk compared to chemo and it's side effects. However, won't be the case for me, due to location. I mean, come on, I'm gonna get poison lasered up my Butt. Sores, fistulas, rashes, pain in the rectal area is different than your arm or armpit, you can still sit and lay down and walk with a scabby armpit.
I have to try and not get worked up about it. Lee keeps saying that this is the price to pay to get healed from the cancer. And that's the goal.
Another bump in the road- I got a rash all around my porta-cath- the exact size of the bandage covering. I can't get the 3 primary chemo drugs in my arm, only via port. So please lift a prayer that this rash heals and DOESN'T turn into an infection, I need to get back on full chemo cycles.
Other than that, just another day in Cancer Paradise!